{"id":11826,"date":"2026-09-25T14:55:49","date_gmt":"2026-09-25T12:55:49","guid":{"rendered":"https:\/\/fundacionrecover.org\/?p=11826"},"modified":"2026-09-25T15:04:18","modified_gmt":"2026-09-25T13:04:18","slug":"linda-de-ghana-atteinte-de-la-maladie-de-clowes-est-traitee-en-espagne-grace-au-programme-patients","status":"publish","type":"post","link":"https:\/\/fundacionrecover.org\/fr\/linda-de-ghana-con-sindrome-cloves-es-tratada-en-espana-gracias-al-programa-pacientes\/","title":{"rendered":"Linda, une jeune Ghan\u00e9enne atteinte du syndrome CLOVES, est trait\u00e9e en Espagne gr\u00e2ce au Programme Patients."},"content":{"rendered":"

Linda avait seulement 6 ans lorsqu'elle accompagnait sa m\u00e8re dans son stand de vente dans un march\u00e9 de rue d'Accra, au Ghana. En 2016, l'\u00e9tat de son bras a attir\u00e9 l'attention de Pablo, un pilote espagnol qui travaillait alors pour une compagnie a\u00e9rienne ghan\u00e9enne.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Depuis lors, pendant dix ans, Pablo a maintenu le contact avec Linda et a tent\u00e9, par divers moyens, qu\u2019elle puisse poursuivre ses \u00e9tudes et retrouver sa sant\u00e9, tant dans son pays qu\u2019en Espagne. Aucun de ces efforts n\u2019a abouti et la maladie de Linda, qui n\u2019\u00e9tait m\u00eame pas diagnostiqu\u00e9e au Ghana, a continu\u00e9 de progresser.<\/p>\n\n\n\n

En 2025, Pablo Il a d\u00e9couvert le programme Patients de la Fondation Recover<\/mark><\/a>. Une conversation lui a redonn\u00e9 espoir que Linda pourrait recevoir des soins en Espagne. Lorsque Recover a pr\u00e9sent\u00e9 le cas \u00e0 l\u2019\u00e9tude, le diagnostic a \u00e9t\u00e9 imm\u00e9diat : Linda souffre du syndrome CLOVES, une maladie rare qui provoque une croissance excessive et anormale des tissus du corps ainsi que des malformations des vaisseaux sanguins.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

En septembre, Linda a \u00e9t\u00e9 trait\u00e9e et op\u00e9r\u00e9e \u00e0 l\u2019h\u00f4pital universitaire Quir\u00f3nsalud Pozuelo. Son \u00e9volution est satisfaisante et elle repartira chez elle dans les prochaines semaines. Pendant son s\u00e9jour, la infirmi\u00e8re Luc\u00eda faisait partie de l\u2019\u00e9quipe qui l\u2019accompagnait et les deux ont \u00e9chang\u00e9 des cours d\u2019espagnol et d\u2019anglais. De plus, ces derniers jours, Pablo a r\u00e9serv\u00e9 une place pour Linda dans un coll\u00e8ge \u00e0 dix minutes de sa maison, au lieu du coll\u00e8ge qui lui avait \u00e9t\u00e9 assign\u00e9, \u00e0 deux heures de route en transport public.<\/p>\n\n\n\n

Le cas de Linda est un exemple de l'utilit\u00e9 du Programme Pacientes de la Fondation Recover, qui identifie des cas de personnes qui ne peuvent pas se faire soigner. <\/mark>recevoir un traitement dans leurs pays d'origine<\/mark><\/a> <\/mark>et coordonne sa valorisation, son transfert et son traitement en Espagne. Son d\u00e9veloppement est possible gr\u00e2ce \u00e0 un r\u00e9seau d\u2019h\u00f4pitaux associ\u00e9s au groupe Quir\u00f3nsalud, dont l\u2019engagement a \u00e9t\u00e9 crucial pour prendre soin de Linda.<\/p>\n\n\n\n

<\/p>","protected":false},"excerpt":{"rendered":"

Dix ans apr\u00e8s que l\u2019un de ses pilotes espagnols l\u2019ait rencontr\u00e9e dans un march\u00e9 d\u2019Accra, Linda a pu \u00eatre diagnostiqu\u00e9e, soign\u00e9e et op\u00e9r\u00e9e \u00e0 l\u2019h\u00f4pital universitaire Quir\u00f3nsalud Pozuelo gr\u00e2ce au programme Pacientes de Recover.<\/p>","protected":false},"author":1,"featured_media":11827,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"footnotes":""},"categories":[11],"tags":[],"class_list":["post-11826","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias"],"yoast_head":"\nLinda, una joven de Ghana con s\u00edndrome CLOVES, es tratada en Espa\u00f1a gracias al Programa Pacientes - Fundaci\u00f3n Recover Hospitales para \u00c1frica<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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